Monday, May 16, 2011

Folk Festival

Public Event 2

Day 30 19/04/2011


The end of 30 days, I feel better and I feel proud of myself. This has been hard for me but rewarding at the same time.

I hope that you learnt something and your eyes opened to what I hide.

I want to say thank you to my family and friends for who helped me get to where I am.

Thank you to my mum, for making me strong. For fighting for me and never giving up.
Thank you to my dad, for being there when I wake and for kissing me goodnight.
Thank you to Em, Joe, Patch and Cameron for making me laugh and making everything normal.
Thank you to Kieran & Caroline for being my soulmates, knowing when to trust and when to go crazy.
Thank you to Anita, for never letting me go to far.
Thank you to the rest of my family, for the moments of perfection that you have given me.
Thank you to the doctors, nurses and medical staff who have believed in my enough to give me my life.
Thank you to Ann and Elisa for always listening to me and believing in me.
Thank you to my teachers and friends at CIT, these photos would not be possible without you.
Thank you for letting me open my life to you.

Day 29 18/04/2011


I don't really know what the future holds for me. I have know from an early age that I would not live a long life, I have had many friends die around me with this illness. My closest friend died at the age of 21 waiting for a transplant.

I have a list of things that I want to do before I die:
-See a ballet
-Travel to Israel
-Get a bunny
-Read all of Jane Austin's books
-Learn to tap dance
-Have my own exhibition
-Learn to quilt
-See an Oprah
-Live away from Canberra
-And fall in LOVE

Most of all I don't want to die young, there are many things I want to do that aren't on my list like becoming a better person. I want the chance to grow and change, I haven't yet found myself. I'm learning who I am more with each day, but it's not enough for me to know only half of myself.

What I think I am most scared of is getting sicker and just wasting away in bed, being trapped then dying. Being a pain to someone me needing them more then they need me. I know that everyone doesn't get what they want, but some part of me thinks that I deserve more. I don't want everything handed to me, I love working for things.
And I hate when people say that you could die at any moment, I know that I will die young. Maybe not a young as I thought but young.

Day 28 17/04/2011


I'm very prone to have high blood sugar levels, because I have a very strong sweet tooth and because I am always hungry. I hate the diabetes and it would be the one thing that I would take away if I could. I would happily live with the CF and liver transplant.

High blood sugar levels can lead to other things such as losing your eye sight, the function of your kidneys and in the end the your legs as well. It is a bother that if you one part of your body is broken then 20 other parts of your body will become broken as well.

The normal blood sugar level is between 4.0 - 8.0 any higher then that is a worry and any lower then that and you have a hy-po where you have to have sugar ASAP or you could end up in a coma. A hy-per is when your blood sugar is to high above 15.0. The highest my blood sugar has ever been is 34.0. When I was fist diagnosed with diabetes I was having blood sugar levels of 30.0 and above for days at a time.

You should test your blood sugar level at least 4 times per day. You do this before you take you insulin or before meal times. This is because you need to constantly monitor it so that you can adjust you insulin accordingly. Food with a higher sugar intake will increase your blood sugar, (so lollies and soft drinks are off the table) you should be eating foods with carbohydrates as to stabilize you blood sugar.

Diabetes makes it hard to eat the things you want, (I have been to so many parties where there is nothing I can eat)! It makes it harder to skip meals and not eat regularly. I also hate diabetes because it is so full of pain, blood sugar levels are tested though a finger pricks and then insulin is delivered through the use of needles into the legs, tummy or bum! SO MUCH PAIN! NO FOOD AND PAIN PAIN PAIN!

This photo has the wrong time on it, the time above is right time when I took it.